Noticias de Portugal

Mais uma publicação da equipa que vai sair agora em Janeiro no Journal Of Family Studies.


Parents –children perception of quality of life: highlights for health interventions

Tania Gaspar*
Margarida Gaspar de Matos
Joan Batista- Foguet
José Luís Pais Ribeiro
Isabel Leal



Abstract
The KIDSCREEN-52 is an instrument that assesses ten dimensions of Health-Related Quality of Life (HRQoL). It was developed as a result of studies by the European
Kidscreen Group- University of Berlin (www.kidscreen.org).
During the Portuguese validation process, a model was developed to examine the perceptions of children and their parents of HRQoL. Structural Equation Modelling was used in order to estimate the fit of this model, in both cases according to gender and age.
The specific aim of the present study is to report the extent to which results differ by gender and age. An additional aim was to explore differences between the child and parent versions of the instrument, globally as well as by gender and age of the children
The results are based on a nationally representative sample of 3195 children from 5th grade (48,8%) and 7th grade (51,2%). The mean age was 11,8 years (SD 1,46) and 49,2 per cent of the sample were boys and 50,8 per cent girls. Data from each child was paired with data from their parents (2256 matched sets of data were generated).
Most the subscales exhibited good internal consistency in both the children’s and parent’s versions of KIDSCREEN with values of the alpha coefficient approaching or above 0,8 for most scales. The exception was the subscale concerned with self-perceptions where the coefficient was approximately 0.64 for both children and parents.
Subscale scores for children’s and parents’ versions correlated moderately strongly in the sample of matched pairs. This indicates that children and their parents view their Health-related quality of life consistently although parents tend to perceive their children’s quality of life as better than their children did. Analysis of variance suggested that there were small differences in scores associated with gender and age.
The results confirm that the KIDSCREEN questionnaire is a relevant instrument to estimate the perception of quality of life both in children and their parents. The fact that parents are not totally aware of their children’s subjective HRQoL, and the fact that parents make a difference according to the gender and the age of their children, would be better addressed when the issue is the intervention with families of school aged children.


Key words: Well-being, Health-Related Quality of Life, Children and Adolescents,
Parents



Parabéns Tania e co-autores!







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http://www.ahwg.net/resources/resources.htm#Other
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http://www.ahwg.net/resources/toolkit.htm


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